August 12, 2022 | Lynn NicholsAsher Gerlach, age 6, is a special kid. Not only because he’s one of just 20–30 children in the world with an exceptionally rare genetic disease, according to medical literature, but also because he has a refreshing take on life.“Asher is super-affectionate. He snuggles with
August 3, 2022 | Lynn Nichols, Ruthann RichterIt wasn’t until after his liver transplant that Felix Pon’s personality began to shine. His rare liver disease left him bright yellow, itchy, depleted, and hardly able to smile. He’s making up for it today by greeting everyone he meets with a wide
July 12, 2022 | Lynn NicholsChristian’s severe asthma used to land him in the hospital, but now he’s living an active lifeChristian, left, with his mother and brother.Christian Cureton, age 14, is a self-described old man. He finds TikTok dull, and he doesn’t understand the motivation behind getting “likes.” While
June 30, 2022 | Wendy HealyWhen your child gets hit in the eye with a baseball bat, there’s no such thing as a bridge too far.You know you might hit traffic crossing the San Francisco Bay or spend extra time in the car with a hurt child, but going to
Nothing keeps Jack from smiling, not even when he was diagnosed with a severe form of craniosynostosis. Jack is almost 2 years old and loves to swim, chase his older sister around the house, and just bring lots of laughs to everyone he meets. For such a happy kid, he’s
Drew, who has lymphedema, “is already a great advocate,” says her dad. Five-year-old Drew Rossi has no problem explaining why she wears a daily compression garment. “I have lymphedema,” she tells anyone who asks about the compression sock on her left leg. “She took this diagnosis and ran with it,”
